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WARNINGS for Marfan Syndrome patients
Prevent death, disabilities and blindness. Make sure
that you get the correct treatment for Marfan Syndrome problems!
Only YOU can do it!
- Have regular medical examinations of your:
- NEVER do the following exercise:
- Isometric (straining) - weight-lifting, press-ups, etc.
- Competitive sport.
- Contact sport (impact) - rugby, boxing, netball, etc.
- Until you are tired and your pulse is above 110.
- Very sharp (tearing or stitch-type) pain in the chest, back
or abdomen could be aortic dissection (tearing)
WARN the doctor.
- Spinal surgery - warn the surgeon before the operation:
- Internal spinal bracing often works loose in Marfan Syndrome.
- Larger than normal grafts are needed in Marfan Syndrome.
- Foot and hand operations are usually unsuccessful in
Marfan Syndrome and often result in worse problems.
- Dural ectasia (spinal cord swelling) - warn surgeons
about the possibliity of it before lower spine operations.
- Eye surgery often results in a detached retina.
- Get immediate attention for floaters, "ink" patches and flashing.
- PRK and LASIK surgery (on the cornea) is not recommended
in Marfan Syndrome.
- Hernias need extensive repair in Marfan Syndrome to prevent
future hernias, especially at the operation site.
- Keep fit with GENTLE exercise to strengthen the heart, bones,
joints and muscles that support the spine.
- Relax with gentle exercise, hobbies, friends - to help
stop palitations.
- Do not take herbal remedies as some of them are dangerous in Marfan Syndrome.
Only take supplements if tests have proved that you need them. A balanced diet
provides everything that you need.
Contact SAMSO for more information about any of the above warnings.
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