South African Marfan Syndrome Organisation     Suid-Afrikaanse Marfansindroom Ondersteuningsgroup  
     
 

Afrikaanse weergawe/This site in Afrikaans

What is SAMSO?

The South African Marfan Syndrome organisation is a registered nonprofit organisation for the benefit of those with Marfan Syndrome, their families and doctors in South Africa (and throughout Africa/Middle East).

  Aims Membership Information
  Contact Details Donations Office Bearers

 

Aims

  • to enable sufferers to make contact with other sufferers for mutual support and encouragement.
  • to make known the latest developments in research into the disorder.
  • to make known the latest developments in treatment of the disorder.

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Membership

Benefits
Members of SAMSO benefit in the following ways:
  • receive an Information Pack about Marfan Syndrome and SAMSO on first joining;
  • receive "Connections/Bindings" 4 to 6 times per year (This SAMSO newsletter contains the latest information about Marfan Syndrome and how to cope with it.);
  • can attend meetings to learn more about Marfan Syndrome, ask questions and meet other families with the disorder;
  • can attend lectures, or receive notes from lectures;
  • can order brochures, medical reports and books about Marfan Syndrome for the price of photostating and postage;
  • can request specific information about Marfan Syndrome from SAMSO, by phone or letter (If the answer is not available, international experts are consulted on the member's behalf.);
  • can receive free genetic and/or psychological counselling from SAMSO by appointment, phone or letter;
  • can have a say in the direction and management of SAMSO by attending meetings or by phoning/writing.


Costs
Yearly subscriptions are R50 and all donations are very welcome
People who cannot afford subs, or even a small donation, can ask to remain on the mailing list as subsidised members.

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Information

  R = recommended RR = highly recommended
  No. Title Price
  SAM/001a Marfan Syndrome - Fact Sheet *Free
  SAM/001b

Marfansindroom - Inligtingstuk

* Gratis
  SAM/002 Marfan Syndrome - Introduction/Marfansindroom - Inleiding * Free/* Gratis
R SAM/003 Genetic Counselling Issues - Prof A Christianson R 0.60
R SAM/004 Eye Concerns in Marfan Syndrome - Prof T Carmichael R 1.80
R SAM/005 The Marfan Heart - Dr D Smith R 1.20
  SAM/008 Palpitations in Marfan Syndrome/Hartkloppings in
Marfansindroom - L P Higgs
R 1.80
RR SAM/009a

The Marfan Syndrome Handbook - L P Higgs
ISBN 0-620-27642-8

R50.00
(R27 for SAMSO members)
  SAM/009b Die Marfansindroom Handboek - L P Higgs
ISBN 0-620-29490-6
R50.00
(R27 vir SAMSO lede)
R SAM/010a Marfan Matters 2003 - L P Higgs R2.10
R SAM/010b Marfan Matters 2004 R2.10
R SAM/010c Marfan Matters 2005 R1.80
R SAM/010d Marfan Matters 2006 R2.10
R SAM/010e Marfan Matters 2007
  SAM/011 Herbal Remedies and Supplements - from Connections/Bindings R0.60
R SAM/012 Exercise - from Connections/Bindings R0.90
R SAM/013 Aneurysm and Dissection - from Connections/Bindings R2.10

 


* Sent to members on joining

  • Technical Information - contact SAMSO for catalogue of medical journal papers
  • Ordering - send an order with a crossed cheque, payable to SAMSO, for the price of the article plus postage.
Postage: Orders up to R2.50 R2.05
  Orders from R2.50 to R8.00 R4.10
  Orders over R8.00 R5.15

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Contact Details

Postal address:

SAMSO
P O Box 7294
Pretoria
0001
South Africa


Telephone: (012) 333-3894, (International +27 12 333 3894)

Office hours: Monday - 9am to 8pm, Wednesday - 9am to 5 pm ONLY

Fax: 086 675 7710

e-mail:
admin@marfan.org.za - business and administration
info@marfan.org.za - information
web@marfan.org.za - webmaster (Richard Higgs)
chair@marfan.org.za - chairman (Lorna Higgs)

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Donations

We welcome donations to SAMSO for the running of the support group, administration, support of members who cannot afford membership and the maintenance of this website. Donations can be made to our bank account: Please contact us for details.

NB: Please send the deposit slip to SAMSO so that we can send you a receipt.

Office Bearers

Committee 2008
Chairman: L Higgs
Members: R Higgs(webmaster)
V Jones
L van Eyk
M Taffara
D van Eyk
S Hartley

Trustees 2008
Lorna Higgs, David van Eyk, Val Jones


Auditor
D P S Badenhorst - AUDITSA

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