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Afrikaanse weergawe/This site in Afrikaans

What is SAMSO?

The South African Marfan Syndrome organisation is a registered nonprofit organisation for the benefit of those with Marfan Syndrome, their families and doctors in South Africa (and throughout Africa/Middle East).

	Aims	Membership	Information
	Contact Details	Donations	Office Bearers

Aims

to enable sufferers to make contact with other sufferers for mutual support and encouragement.
to make known the latest developments in research into the disorder.
to make known the latest developments in treatment of the disorder.

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Membership

Benefits
Members of SAMSO benefit in the following ways:

receive an Information Pack about Marfan Syndrome and SAMSO on first joining;
receive "Connections/Bindings" 4 to 6 times per year (This SAMSO newsletter contains the latest information about Marfan Syndrome and how to cope with it.);
can attend meetings to learn more about Marfan Syndrome, ask questions and meet other families with the disorder;
can attend lectures, or receive notes from lectures;
can order brochures, medical reports and books about Marfan Syndrome for the price of photostating and postage;
can request specific information about Marfan Syndrome from SAMSO, by phone or letter (If the answer is not available, international experts are consulted on the member's behalf.);
can receive free genetic and/or psychological counselling from SAMSO by appointment, phone or letter;
can have a say in the direction and management of SAMSO by attending meetings or by phoning/writing.

Costs
Yearly subscriptions are R50 and all donations are very welcome
People who cannot afford subs, or even a small donation, can ask to remain on the mailing list as subsidised members.

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Information

Marfan Syndrome - Description
Books and pamphlets

No.	Title	Price
SAM/001a	Marfan Syndrome - Fact Sheet	*Free
SAM/001b	Marfansindroom - Inligtingstuk	* Gratis
SAM/002	Marfan Syndrome - Introduction/Marfansindroom - Inleiding	* Free/* Gratis
SAM/003	Genetic Counselling Issues - Prof A Christianson	R 0.60
SAM/004	Eye Concerns in Marfan Syndrome - Prof T Carmichael	R 1.80
SAM/005	The Marfan Heart - Dr D Smith	R 1.20
SAM/008	Palpitations in Marfan Syndrome/Hartkloppings in Marfansindroom - L P Higgs	R 1.80
SAM/009a	The Marfan Syndrome Handbook - L P Higgs	R50.00 (R20 for SAMSO members)
SAM/009b	Die Marfansindroom Handboek - L P Higgs	R50.00 (R20 vir SAMSO lede)
SAM/010a	Marfan Matters 2003 - L P Higgs	R2.10
SAM/010b	Marfan Matters 2004	R2.10
SAM/010c	Marfan Matters 2005	R1.80
SAM/010d	Marfan Matters 2006	R2.10
SAM/010e	Marfan Matters 2007	R2.10

* Sent to members on joining

Technical Information - contact SAMSO for catalogue of medical journal papers
Ordering - send an order with a crossed cheque, payable to SAMSO, for the price of the article plus postage.

Postage:	Orders up to R2.50	R2.05
	Orders from R2.50 to R8.00	R4.10
	Orders over R8.00	R5.15

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Contact Details

Postal address:

SAMSO
P O Box 7294
Pretoria
0001
South Africa

Telephone: (012) 333-3894, (International +27 12 333 3894)

Office hours: Monday - 9am to 8pm, Wednesday - 9am to 5 pm ONLY

Fax: 086 675 7710

e-mail:
admin@marfan.org.za - business and administration
info@marfan.org.za - information
web@marfan.org.za - webmaster (Richard Higgs)
chair@marfan.org.za - chairman (Lorna Higgs)

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Donations

We welcome donations to SAMSO for the running of the support group, administration, support of members who cannot afford membership and the maintenance of this website. Donations can be made to our bank account: Please contact us for details.

NB: Please send the deposit slip to SAMSO so that we can send you a receipt.

Office Bearers

Committee 2008
Chairman: L Higgs
Members: R Higgs(webmaster)
V Jones
L van Eyk
M Taffara
D van Eyk
S Hartley

Trustees 2008
Lorna Higgs, David van Eyk, Val Jones

Auditor
D P S Badenhorst - AUDITSA

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